Tagged with Congenital heart defects

Cyproheptadine and Twinkies: A winning combination?

For those of you wondering about Colman, he’s been doing great. We had a checkup at TCH not that long ago and everything looked the same heart-wise, which is fantastic news. I told the team in Houston that I’d taken Colman to a gastroenterologist here in San Antonio to make sure I’d covered all the … Continue reading

If heart mamas ruled the world…

…I think this would be an excellent start. Although there’s no way this is an exhaustive list by any means. 1. There would be no 4 a.m. x-rays followed by 6 a.m. weight checks. 2. Every child would be required to have all vaccinations unless an actual medical doctor has given a reason that a particular vaccination … Continue reading

…I wouldn’t have it any other way.

We survived the first week of school. I’d be lying if I said it wasn’t a little rough. Junior high is hard, y’all. And I have two in junior high now. Liam is in the eighth grade and Colman just started sixth grade. Sixth! Ugh. The first day was bad. Colman came home in tears … Continue reading

Spring Break wrap-up

Once we finally got going last week, I think the kids had a nice Spring Break. We went to Galveston for a long weekend. Not my favorite Texas beach, but it was nice to get away. Plus, I had to take Colman to Houston on Friday for his cardiology checkup so it was convenient, which … Continue reading

Monkey business

Rowan comes in our room every morning at the crack of dawn to “snuggle.” I love it, but I just want to snuggle. I don’t want to talk, but he’s always full of burning questions. Like this morning–Some might argue it was the middle of the night–Rowan asked in his most rested and chipper voice, … Continue reading

After a decade, there will be tears

There is no such thing as insignificant growth. That’s my new mantra. Colman measured 1.6 centimeters taller than he had on our previous trip to Houston. In talking to one of the heart failure cardiologists, he said, “Well, I wouldn’t classify that as significant growth. I’m disappointed.” Truthfully, I was too, but it was something … Continue reading

From Auschwitz survivor to supermodel thin

Colman and I went to Houston last Thursday for a heart check in their transplant clinic. I would’ve updated before now, but I’ve been very busy. Doing what? Well, specifically, I’m petitioning Merriam-Webster for the addition of the word “wenis” into the dictionary. For all of my friends who only have girl children instead of … Continue reading

Dear ADHD, you suck!

One of the things I haven’t really posted much about is the fact that Colman suffers from ADHD. It’s thought that more than ten percent of children who have complex congenital heart defects also have ADHD, which is a much higher percentage than children in the normal population. I’ve been told they think there’s some correlation … Continue reading

Purell: A love elixir

Last Thursday was yet another trip to TCH for Colman and me. We had our long-awaited genetics appointment set for the afternoon, so since we were going to be in Houston anyway, Dr. Liou wanted Colman to do another treadmill test to see how he was performing post fenestration closure. Colman rocked the treadmill test. Last … Continue reading