Tagged with Congenital heart defects

And then there were three

Today has been hectic, relaxed and chaotic all rolled into one. It’s exactly as a house should be that has three boys who live in it, but it’s been so long since Colman’s felt good, I’d forgotten what it was like. Three boys running through the house chasing each other with Nerf guns. Three boys … Continue reading

Does this fluid make my butt look big?

Colman was released about 9 p.m. last night, which put us getting into San Antonio around midnight. That’s the main reason I wasn’t able to post an update last night. I woke up at 6 a.m. yesterday morning. Not because I was rested, but because I was freezing. I’d already stolen one of Colman’s blankets … Continue reading

Tick-tock, tick-tock

Colman and I got started early this morning. I woke him up at 5:30 a.m. and we were checked in at TCH by 5:50 a.m. Then we waited for an hour and went to pre-op holding where the doctor met up with us to perform the metabolic cart, which pretty much consisted of Colman laying … Continue reading

Last-ditch attempt

Thursday. I’m dreading it, but I also want it to be behind us already. Time is doing that weird thing it seems to do when you dread something. It’s speeding up and slowing down all at once. I feel like a little girl again, pouting in the department store on a shopping expedition about how … Continue reading

I have a ten-ager

First, I’d like to say, Thank goodness I’m still alive. Because based on the picture above, if looks could kill, I’d be a dead duck. I snapped this picture of Colman through the window yesterday after I told him I thought he should go outside to play for a bit. He gave me a horrible … Continue reading

Confession time

I have a confession to make: I hate Jump Rope for the Heart. Then another confession to make: I hate that I hate Jump Rope for the Heart. Yes, I’m totally conflicted on the subject. I know it’s a good thing as far as raising money for our school. They teach kids the importance of … Continue reading

Clean poop–Oxymoron or not?

The first day of Colman’s transplant evaluation was a pretty long one that started at the lab where they drew blood (and tears). We had appointments in the morning with immunology, infectious disease and nutrition. The afternoon consisted of occupational and physical therapy assessments. Colman was ready to kill me. Especially when we went to … Continue reading

A bitter little pill

We made it through the Christmas holiday in good shape. I came home after running a few errands on the 27th, and Kevin had taken down the Christmas tree and put all the decorations away. Needless to say, I fell in love with him all over again. New Year’s Eve, I received a call from … Continue reading

Let’s call it pre-owned

I’ve always been an organ donor. Maybe not always, but for sure since the time I got my driver’s license when I turned sixteen. I remember the sour lady behind the desk at the Department of Public Safety in Victoria asking me, “Do you want to be an organ donor?” (You’ve got to say it … Continue reading

God bless cataracts!

Something about turning thirty-nine today makes me wish I could skip it and head straight to forty. Maybe because when I say “I’m thirty-nine,” I feel like people think I’m lying. Not that I’ve ever cared what anybody else thinks, but I feel like I can actually hear the “Sure you are, Honey,” that flits … Continue reading