Tagged with HLHS

Cyproheptadine and Twinkies: A winning combination?

For those of you wondering about Colman, he’s been doing great. We had a checkup at TCH not that long ago and everything looked the same heart-wise, which is fantastic news. I told the team in Houston that I’d taken Colman to a gastroenterologist here in San Antonio to make sure I’d covered all the … Continue reading

…I wouldn’t have it any other way.

We survived the first week of school. I’d be lying if I said it wasn’t a little rough. Junior high is hard, y’all. And I have two in junior high now. Liam is in the eighth grade and Colman just started sixth grade. Sixth! Ugh. The first day was bad. Colman came home in tears … Continue reading

Spring Break wrap-up

Once we finally got going last week, I think the kids had a nice Spring Break. We went to Galveston for a long weekend. Not my favorite Texas beach, but it was nice to get away. Plus, I had to take Colman to Houston on Friday for his cardiology checkup so it was convenient, which … Continue reading

I Hate Piñatas

I’m so excited to share with you guys that my book is finally out today! For those of you that know me well, you’ll notice I published this book using my maiden name. That’s my way of giving the gift of deniability to anybody who feels they might need it. Except for the two poor … Continue reading

After a decade, there will be tears

There is no such thing as insignificant growth. That’s my new mantra. Colman measured 1.6 centimeters taller than he had on our previous trip to Houston. In talking to one of the heart failure cardiologists, he said, “Well, I wouldn’t classify that as significant growth. I’m disappointed.” Truthfully, I was too, but it was something … Continue reading

From Auschwitz survivor to supermodel thin

Colman and I went to Houston last Thursday for a heart check in their transplant clinic. I would’ve updated before now, but I’ve been very busy. Doing what? Well, specifically, I’m petitioning Merriam-Webster for the addition of the word “wenis” into the dictionary. For all of my friends who only have girl children instead of … Continue reading

Dear ADHD, you suck!

One of the things I haven’t really posted much about is the fact that Colman suffers from ADHD. It’s thought that more than ten percent of children who have complex congenital heart defects also have ADHD, which is a much higher percentage than children in the normal population. I’ve been told they think there’s some correlation … Continue reading

Purell: A love elixir

Last Thursday was yet another trip to TCH for Colman and me. We had our long-awaited genetics appointment set for the afternoon, so since we were going to be in Houston anyway, Dr. Liou wanted Colman to do another treadmill test to see how he was performing post fenestration closure. Colman rocked the treadmill test. Last … Continue reading

And then there were three

Today has been hectic, relaxed and chaotic all rolled into one. It’s exactly as a house should be that has three boys who live in it, but it’s been so long since Colman’s felt good, I’d forgotten what it was like. Three boys running through the house chasing each other with Nerf guns. Three boys … Continue reading