Tagged with CHDs

Cyproheptadine and Twinkies: A winning combination?

For those of you wondering about Colman, he’s been doing great. We had a checkup at TCH not that long ago and everything looked the same heart-wise, which is fantastic news. I told the team in Houston that I’d taken Colman to a gastroenterologist here in San Antonio to make sure I’d covered all the … Continue reading

If heart mamas ruled the world…

…I think this would be an excellent start. Although there’s no way this is an exhaustive list by any means. 1. There would be no 4 a.m. x-rays followed by 6 a.m. weight checks. 2. Every child would be required to have all vaccinations unless an actual medical doctor has given a reason that a particular vaccination … Continue reading

From Auschwitz survivor to supermodel thin

Colman and I went to Houston last Thursday for a heart check in their transplant clinic. I would’ve updated before now, but I’ve been very busy. Doing what? Well, specifically, I’m petitioning Merriam-Webster for the addition of the word “wenis” into the dictionary. For all of my friends who only have girl children instead of … Continue reading

Dear ADHD, you suck!

One of the things I haven’t really posted much about is the fact that Colman suffers from ADHD. It’s thought that more than ten percent of children who have complex congenital heart defects also have ADHD, which is a much higher percentage than children in the normal population. I’ve been told they think there’s some correlation … Continue reading

Purell: A love elixir

Last Thursday was yet another trip to TCH for Colman and me. We had our long-awaited genetics appointment set for the afternoon, so since we were going to be in Houston anyway, Dr. Liou wanted Colman to do another treadmill test to see how he was performing post fenestration closure. Colman rocked the treadmill test. Last … Continue reading

Does this fluid make my butt look big?

Colman was released about 9 p.m. last night, which put us getting into San Antonio around midnight. That’s the main reason I wasn’t able to post an update last night. I woke up at 6 a.m. yesterday morning. Not because I was rested, but because I was freezing. I’d already stolen one of Colman’s blankets … Continue reading

Tick-tock, tick-tock

Colman and I got started early this morning. I woke him up at 5:30 a.m. and we were checked in at TCH by 5:50 a.m. Then we waited for an hour and went to pre-op holding where the doctor met up with us to perform the metabolic cart, which pretty much consisted of Colman laying … Continue reading

Viva Fiesta!

We’ve officially kicked off Fiesta here in San Antonio. For those of you who may not live in San Antonio, this is the time of year when the entire city goes into party mode for three weeks. I’ve become so accustomed to this time of year, that when my sister was down from Dallas, I … Continue reading

I have a ten-ager

First, I’d like to say, Thank goodness I’m still alive. Because based on the picture above, if looks could kill, I’d be a dead duck. I snapped this picture of Colman through the window yesterday after I told him I thought he should go outside to play for a bit. He gave me a horrible … Continue reading