Vacation…Then back to school

I didn’t mean to take a break from my blog, but summer happened and before I knew it, school was starting. I was completely unprepared for the first day of school as evidenced by my mad dash this past weekend to find school supplies for Liam and get everything in order for Monday morning, but … Continue reading

Dear ADHD, you suck!

One of the things I haven’t really posted much about is the fact that Colman suffers from ADHD. It’s thought that more than ten percent of children who have complex congenital heart defects also have ADHD, which is a much higher percentage than children in the normal population. I’ve been told they think there’s some correlation … Continue reading

Hermit crab people

On a scale of one to ten with one being the absolute best and ten being the absolute worst as far as Worst News Ever, this ranks as possibly a negative two. Sandy Claus has died. “She”–Who the hell really knows, right?–was Colman’s hermit crab. We got two hermit crabs two years ago, and the only … Continue reading

“Who you gonna call?”

Before work yesterday, I was throwing a load of laundry into the wash and Rowan was helping me. By “helping” I mean that we have a top loading washing machine and he throws random clothing in willy-nilly like he’s one of the San Antonio Spurs. It’s all exactly as helpful as it sounds as I … Continue reading

Purell: A love elixir

Last Thursday was yet another trip to TCH for Colman and me. We had our long-awaited genetics appointment set for the afternoon, so since we were going to be in Houston anyway, Dr. Liou wanted Colman to do another treadmill test to see how he was performing post fenestration closure. Colman rocked the treadmill test. Last … Continue reading

And then there were three

Today has been hectic, relaxed and chaotic all rolled into one. It’s exactly as a house should be that has three boys who live in it, but it’s been so long since Colman’s felt good, I’d forgotten what it was like. Three boys running through the house chasing each other with Nerf guns. Three boys … Continue reading

Does this fluid make my butt look big?

Colman was released about 9 p.m. last night, which put us getting into San Antonio around midnight. That’s the main reason I wasn’t able to post an update last night. I woke up at 6 a.m. yesterday morning. Not because I was rested, but because I was freezing. I’d already stolen one of Colman’s blankets … Continue reading

Tick-tock, tick-tock

Colman and I got started early this morning. I woke him up at 5:30 a.m. and we were checked in at TCH by 5:50 a.m. Then we waited for an hour and went to pre-op holding where the doctor met up with us to perform the metabolic cart, which pretty much consisted of Colman laying … Continue reading

Last-ditch attempt

Thursday. I’m dreading it, but I also want it to be behind us already. Time is doing that weird thing it seems to do when you dread something. It’s speeding up and slowing down all at once. I feel like a little girl again, pouting in the department store on a shopping expedition about how … Continue reading

Happy Cinco de Mayo!

I know it’s been a while since I updated, but I needed a bit of time to process the plan as it was set forth at Colman’s last clinic visit to TCH. Colman and I left early in the morning instead of going to Houston the night before. It makes for a pretty long day. … Continue reading