Tagged with Hypoplastic Left Heart Syndrome

Monkey business

Rowan comes in our room every morning at the crack of dawn to “snuggle.” I love it, but I just want to snuggle. I don’t want to talk, but he’s always full of burning questions. Like this morning–Some might argue it was the middle of the night–Rowan asked in his most rested and chipper voice, … Continue reading

After a decade, there will be tears

There is no such thing as insignificant growth. That’s my new mantra. Colman measured 1.6 centimeters taller than he had on our previous trip to Houston. In talking to one of the heart failure cardiologists, he said, “Well, I wouldn’t classify that as significant growth. I’m disappointed.” Truthfully, I was too, but it was something … Continue reading

Tick-tock, tick-tock

Colman and I got started early this morning. I woke him up at 5:30 a.m. and we were checked in at TCH by 5:50 a.m. Then we waited for an hour and went to pre-op holding where the doctor met up with us to perform the metabolic cart, which pretty much consisted of Colman laying … Continue reading

Let’s call it pre-owned

I’ve always been an organ donor. Maybe not always, but for sure since the time I got my driver’s license when I turned sixteen. I remember the sour lady behind the desk at the Department of Public Safety in Victoria asking me, “Do you want to be an organ donor?” (You’ve got to say it … Continue reading

Let’s talk about time management

As I’m typing this, I’m listening to the hubs make horrible retching sounds while muttering under his breath, “Why on earth would she use the self-cleaning function on the oven while we’re all here in the house? What is she trying to do–kill us?” At least I’m pretty sure that’s what he’s muttering because he’s only said … Continue reading

Just Keep Swimming

We made it through the first week of school and I have to count that as a huge WIN! After a lazy past few weeks at home, getting the boys out the door was a major adjustment that included lots of yelling “FOCUS!” to all three boys. Three boys, three different schools and three morning drop-offs. It’s been hectic … Continue reading

The TALK, the BOOK, and the CONSENT.

Colman had an appointment at Texas Children’s Hospital in Houston on Tuesday, July 2nd, for his three-month checkup at the Cardiomyopathy Clinic. My mom decided to tag along with us, which was nice, so I picked her up on our way to Houston last Monday. Then we all met up with Robbie and his family. Robbie was one … Continue reading

Peanut Butter, Peanut Butter and Peanut Butter

Colman had his yearly well checkup last week with our pediatrician. We’re pretty sure, based on all of Colman’s measurements from the various doctors we see, that he hasn’t grown any in the past year. Our pediatrician is sending the data to Texas Children’s Hospital so they can add that to Colman’s file. I don’t … Continue reading