Rowan comes in our room every morning at the crack of dawn to “snuggle.” I love it, but I just want to snuggle. I don’t want to talk, but he’s always full of burning questions. Like this morning–Some might argue it was the middle of the night–Rowan asked in his most rested and chipper voice, … Continue reading
Tagged with heart transplant …
From Auschwitz survivor to supermodel thin
Colman and I went to Houston last Thursday for a heart check in their transplant clinic. I would’ve updated before now, but I’ve been very busy. Doing what? Well, specifically, I’m petitioning Merriam-Webster for the addition of the word “wenis” into the dictionary. For all of my friends who only have girl children instead of … Continue reading
Last-ditch attempt
Thursday. I’m dreading it, but I also want it to be behind us already. Time is doing that weird thing it seems to do when you dread something. It’s speeding up and slowing down all at once. I feel like a little girl again, pouting in the department store on a shopping expedition about how … Continue reading
Viva Fiesta!
We’ve officially kicked off Fiesta here in San Antonio. For those of you who may not live in San Antonio, this is the time of year when the entire city goes into party mode for three weeks. I’ve become so accustomed to this time of year, that when my sister was down from Dallas, I … Continue reading
I have a ten-ager
First, I’d like to say, Thank goodness I’m still alive. Because based on the picture above, if looks could kill, I’d be a dead duck. I snapped this picture of Colman through the window yesterday after I told him I thought he should go outside to play for a bit. He gave me a horrible … Continue reading
Medical review board postponed
I wanted to give everybody a quick update. I heard late this afternoon, due to the unavailability of a couple of key doctors that comprise the transplant team, the medical review board did not meet this morning. Huge bummer. However, they are going to try to meet next Friday. You’ll be happy to know that … Continue reading
Embracing privilege
The medical review board is supposed to meet tomorrow and make a decision as far as listing Colman for a heart transplant. There are a few different scenarios that could play out tomorrow. The MRB could make the decision to list Colman, table the decision because they feel like he’s not quite sick enough or decide … Continue reading
Hospital headache
I know I’ve mentioned hospital headache before, but I swear it’s a real thing. I guess it’s brought on by crazy amounts of stress and sitting, but I’ve found it lasts for days and hardly anything will help it go away. Yesterday, I finally broke down and visited a chiropractor. After having a stress headache … Continue reading
Clean poop–Oxymoron or not?
The first day of Colman’s transplant evaluation was a pretty long one that started at the lab where they drew blood (and tears). We had appointments in the morning with immunology, infectious disease and nutrition. The afternoon consisted of occupational and physical therapy assessments. Colman was ready to kill me. Especially when we went to … Continue reading
Crazy Heart Mama 