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Viva Fiesta!

We’ve officially kicked off Fiesta here in San Antonio. For those of you who may not live in San Antonio, this is the time of year when the entire city goes into party mode for three weeks. I’ve become so accustomed to this time of year, that when my sister was down from Dallas, I … Continue reading →

I have a ten-ager

First, I’d like to say, Thank goodness I’m still alive. Because based on the picture above, if looks could kill, I’d be a dead duck. I snapped this picture of Colman through the window yesterday after I told him I thought he should go outside to play for a bit. He gave me a horrible … Continue reading →

Medical review board postponed

I wanted to give everybody a quick update. I heard late this afternoon, due to the unavailability of a couple of key doctors that comprise the transplant team, the medical review board did not meet this morning. Huge bummer. However, they are going to try to meet next Friday. You’ll be happy to know that … Continue reading →

Embracing privilege

The medical review board is supposed to meet tomorrow and make a decision as far as listing Colman for a heart transplant. There are a few different scenarios that could play out tomorrow. The MRB could make the decision to list Colman, table the decision because they feel like he’s not quite sick enough or decide … Continue reading →

Houston (means that I’m one day closer to you)

Later this afternoon, Colman and I will be on our way to Houston for what is, hopefully, the last day of tests for the transplant evaluation. I believe I can say with certainty after tomorrow that we’ve seen more specialists than not. And I’m not sure that’s something to brag about, but I’ll just go … Continue reading →

Kicking off heart month

Colman and I spent the majority of the day on Wednesday in the emergency room at CHOSA. I picked him up from school because he was complaining of chest pain and shortness of breath. When I called his cardiologist, he told me that he thought from the way Colman was describing the pain that it … Continue reading →

Confession time

I have a confession to make: I hate Jump Rope for the Heart. Then another confession to make: I hate that I hate Jump Rope for the Heart. Yes, I’m totally conflicted on the subject. I know it’s a good thing as far as raising money for our school. They teach kids the importance of … Continue reading →

Tabled for further tests

After three full days of testing for the heart transplant evaluation, they presented Colman’s case to the transplant committee last Friday and the decision was made to table the decision because they need more testing. That’s right. We have to go back to Houston for another full day of testing before they feel comfortable making … Continue reading →

Hospital headache

I know I’ve mentioned hospital headache before, but I swear it’s a real thing. I guess it’s brought on by crazy amounts of stress and sitting, but I’ve found it lasts for days and hardly anything will help it go away. Yesterday, I finally broke down and visited a chiropractor. After having a stress headache … Continue reading →

Clean poop–Oxymoron or not?

The first day of Colman’s transplant evaluation was a pretty long one that started at the lab where they drew blood (and tears). We had appointments in the morning with immunology, infectious disease and nutrition. The afternoon consisted of occupational and physical therapy assessments. Colman was ready to kill me. Especially when we went to … Continue reading →