As I’m typing this, I’m listening to the hubs make horrible retching sounds while muttering under his breath, “Why on earth would she use the self-cleaning function on the oven while we’re all here in the house? What is she trying to do–kill us?” At least I’m pretty sure that’s what he’s muttering because he’s only said … Continue reading
Tagged with Congenital heart defects …
Bribery
Everybody knows weight loss is a very slow process that is fraught with all sorts of problems such as will-power, genetics, metabolism and a myriad of other physical and emotional issues. I’m here to tell you that weight gain can be just as frustratingly slow. After one month of packing every last calorie I can … Continue reading
Gulf Coast Girl
We just got back from Seaside, Florida. We wanted to take the boys somewhere fun for summer vacation, but we’re still limited on where we can go since Colman hasn’t been cleared to fly and he can’t stay somewhere that’s higher than five thousand feet in elevation. So a couple of months ago when Kevin … Continue reading
The TALK, the BOOK, and the CONSENT.
Colman had an appointment at Texas Children’s Hospital in Houston on Tuesday, July 2nd, for his three-month checkup at the Cardiomyopathy Clinic. My mom decided to tag along with us, which was nice, so I picked her up on our way to Houston last Monday. Then we all met up with Robbie and his family. Robbie was one … Continue reading
Peanut Butter, Peanut Butter and Peanut Butter
Colman had his yearly well checkup last week with our pediatrician. We’re pretty sure, based on all of Colman’s measurements from the various doctors we see, that he hasn’t grown any in the past year. Our pediatrician is sending the data to Texas Children’s Hospital so they can add that to Colman’s file. I don’t … Continue reading
“I really need her in the free, please.”
Finally, I spoke with Dr. Dreyer from Texas Children’s Hospital about a week ago. I’d been emailing the transplant coordinator back and forth, but had still not heard from him. The heart team was supposed to present Colman’s case at conference the Monday after his heart cath, but they ended up not getting to it. … Continue reading
The Heart Catheterization Is Scheduled
Colman’s heart cath has been scheduled for tomorrow at 9:00 a.m. The cath lab at Texas Children’s Hospital called on Thursday of last week to schedule Colman. The woman who called me introduced herself as the cath lab nurse coordinator and said something like, “Hi, we need to get Colman scheduled for his heart cath. … Continue reading
Words to live by
I have the worst cough ever. Maybe not “worst ever” as in history-of-the-world ever, but worst ever I have had in my lifetime. I think I may have to break down and go to the doctor’s office today, so that I can pay my $25 copay for him to tell me that it’s just viral. … Continue reading
Happy Congenital Heart Defects Awareness Day!
I know it’s Valentine’s Day for most people, but we celebrate Congenital Heart Defects Awareness Day at our house as well. It’s the end of Congenital Heart Defects Awareness Week, which started on February 7. Congenital Heart Defects strikes 1 in 100 babies. That’s about 40,000 babies every year. We have two in our household. … Continue reading
Crazy Heart Mama 