Tagged with CHD

Spring Break wrap-up

Once we finally got going last week, I think the kids had a nice Spring Break. We went to Galveston for a long weekend. Not my favorite Texas beach, but it was nice to get away. Plus, I had to take Colman to Houston on Friday for his cardiology checkup so it was convenient, which … Continue reading

Monkey business

Rowan comes in our room every morning at the crack of dawn to “snuggle.” I love it, but I just want to snuggle. I don’t want to talk, but he’s always full of burning questions. Like this morning–Some might argue it was the middle of the night–Rowan asked in his most rested and chipper voice, … Continue reading

After a decade, there will be tears

There is no such thing as insignificant growth. That’s my new mantra. Colman measured 1.6 centimeters taller than he had on our previous trip to Houston. In talking to one of the heart failure cardiologists, he said, “Well, I wouldn’t classify that as significant growth. I’m disappointed.” Truthfully, I was too, but it was something … Continue reading

Last-ditch attempt

Thursday. I’m dreading it, but I also want it to be behind us already. Time is doing that weird thing it seems to do when you dread something. It’s speeding up and slowing down all at once. I feel like a little girl again, pouting in the department store on a shopping expedition about how … Continue reading

Hospital headache

I know I’ve mentioned hospital headache before, but I swear it’s a real thing. I guess it’s brought on by crazy amounts of stress and sitting, but I’ve found it lasts for days and hardly anything will help it go away. Yesterday, I finally broke down and visited a chiropractor. After having a stress headache … Continue reading

A bitter little pill

We made it through the Christmas holiday in good shape. I came home after running a few errands on the 27th, and Kevin had taken down the Christmas tree and put all the decorations away. Needless to say, I fell in love with him all over again. New Year’s Eve, I received a call from … Continue reading

Let’s call it pre-owned

I’ve always been an organ donor. Maybe not always, but for sure since the time I got my driver’s license when I turned sixteen. I remember the sour lady behind the desk at the Department of Public Safety in Victoria asking me, “Do you want to be an organ donor?” (You’ve got to say it … Continue reading

Bribery

Everybody knows weight loss is a very slow process that is fraught with all sorts of problems such as will-power, genetics, metabolism and a myriad of other physical and emotional issues. I’m here to tell you that weight gain can be just as frustratingly slow. After one month of packing every last calorie I can … Continue reading

The TALK, the BOOK, and the CONSENT.

Colman had an appointment at Texas Children’s Hospital in Houston on Tuesday, July 2nd, for his three-month checkup at the Cardiomyopathy Clinic. My mom decided to tag along with us, which was nice, so I picked her up on our way to Houston last Monday. Then we all met up with Robbie and his family. Robbie was one … Continue reading

The Heart Catheterization Is Scheduled

Colman’s heart cath has been scheduled for tomorrow at 9:00 a.m. The cath lab at Texas Children’s Hospital called on Thursday of last week to schedule Colman. The woman who called me introduced herself as the cath lab nurse coordinator and said something like, “Hi, we need to get Colman scheduled for his heart cath. … Continue reading