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Bribery

Everybody knows weight loss is a very slow process that is fraught with all sorts of problems such as will-power, genetics, metabolism and a myriad of other physical and emotional issues. I’m here to tell you that weight gain can be just as frustratingly slow. After one month of packing every last calorie I can … Continue reading

Gulf Coast Girl

We just got back from Seaside, Florida.  We wanted to take the boys somewhere fun for summer vacation, but we’re still limited on where we can go since Colman hasn’t been cleared to fly and he can’t stay somewhere that’s higher than five thousand feet in elevation.  So a couple of months ago when Kevin … Continue reading

The TALK, the BOOK, and the CONSENT.

Colman had an appointment at Texas Children’s Hospital in Houston on Tuesday, July 2nd, for his three-month checkup at the Cardiomyopathy Clinic. My mom decided to tag along with us, which was nice, so I picked her up on our way to Houston last Monday. Then we all met up with Robbie and his family. Robbie was one … Continue reading

“Go Hard or Go Home”

I know what you’re thinking. You guys are thinking that the title of this post indicates my going on some kind of rant about the Spurs losing the NBA Finals last night, but it doesn’t. And, now, y’all are impressed that I’m part psychic. You can continue being impressed. 🙂 There was little fallout from … Continue reading

An Open Letter to the San Antonio Spurs

Dear Spurs, Last Tuesday night you sent my nine-year-old little boy, Colman, to bed sobbing.  SOBBING! He was absolutely and completely shattered over the conclusion of game six. The only way I was able to finally calm him down over that disastrous loss was to tell him that it was only game six and you … Continue reading

Peanut Butter, Peanut Butter and Peanut Butter

Colman had his yearly well checkup last week with our pediatrician. We’re pretty sure, based on all of Colman’s measurements from the various doctors we see, that he hasn’t grown any in the past year. Our pediatrician is sending the data to Texas Children’s Hospital so they can add that to Colman’s file. I don’t … Continue reading

I need some magic!

I took Colman to see a nutritionist this past Tuesday. I’ve been writing down every last morsel of anything and everything Colman is putting in his mouth, so I took those notes with me to the appointment. It looks like Colman is eating the amount of calories he should be eating, which is between 1100 to 1300 … Continue reading

“I really need her in the free, please.”

Finally, I spoke with Dr. Dreyer from Texas Children’s Hospital about a week ago.  I’d been emailing the transplant coordinator back and forth, but had still not heard from him.  The heart team was supposed to present Colman’s case at conference the Monday after his heart cath, but they ended up not getting to it. … Continue reading

Flip-flops and Disposable Gloves

As I was unloading the grocery haul for the week Tuesday afternoon, Colman came running into the kitchen and said, “Mama, Sarah needs you.” What? My cousin, Sarah, never needs me because she’s completely capable of handling any situation, so I dropped the groceries and hurried to see what was going on. Needless to say, … Continue reading

Because Sometimes Not Bad News Is Good News

Sorry it has taken me so long to update about Colman’s heart catheterization on Wednesday. I was getting over what I term “Hospital Headache.” It usually starts about an hour into whatever procedure or surgery Colman is undergoing and seems to get worse in recovery. I tried drinking lots of water, eating something, caffeine and … Continue reading