Tagged with Tricuspid valve

I need some magic!

I took Colman to see a nutritionist this past Tuesday. I’ve been writing down every last morsel of anything and everything Colman is putting in his mouth, so I took those notes with me to the appointment. It looks like Colman is eating the amount of calories he should be eating, which is between 1100 to 1300 … Continue reading

“I really need her in the free, please.”

Finally, I spoke with Dr. Dreyer from Texas Children’s Hospital about a week ago.  I’d been emailing the transplant coordinator back and forth, but had still not heard from him.  The heart team was supposed to present Colman’s case at conference the Monday after his heart cath, but they ended up not getting to it. … Continue reading