Tagged with Heart transplantation

Let’s call it pre-owned

I’ve always been an organ donor. Maybe not always, but for sure since the time I got my driver’s license when I turned sixteen. I remember the sour lady behind the desk at the Department of Public Safety in Victoria asking me, “Do you want to be an organ donor?” (You’ve got to say it … Continue reading

The TALK, the BOOK, and the CONSENT.

Colman had an appointment at Texas Children’s Hospital in Houston on Tuesday, July 2nd, for his three-month checkup at the Cardiomyopathy Clinic. My mom decided to tag along with us, which was nice, so I picked her up on our way to Houston last Monday. Then we all met up with Robbie and his family. Robbie was one … Continue reading

“I really need her in the free, please.”

Finally, I spoke with Dr. Dreyer from Texas Children’s Hospital about a week ago.  I’d been emailing the transplant coordinator back and forth, but had still not heard from him.  The heart team was supposed to present Colman’s case at conference the Monday after his heart cath, but they ended up not getting to it. … Continue reading

Because Sometimes Not Bad News Is Good News

Sorry it has taken me so long to update about Colman’s heart catheterization on Wednesday. I was getting over what I term “Hospital Headache.” It usually starts about an hour into whatever procedure or surgery Colman is undergoing and seems to get worse in recovery. I tried drinking lots of water, eating something, caffeine and … Continue reading