Hospital Daze

We started the transplant evaluation process today and we should have all of the appointments wrapped up by Wednesday. The plan as of now is for Colman’s case to be presented to the medical review board this Friday, January 8th. They have three options. They can say “yes” or “no” or they can table it … Continue reading →

Cath Day

Today has been a rollercoaster day. It started out with our nurse letting us know that the cath lab was ready for Colman at 6:00 a.m., even though our cath time was 7:30 a.m. I mean, my alarm was set to go off at 6:30, so we were a bit disoriented, but we made it … Continue reading →

One day closer

Colman is headed to he cath lab in the morning for a heart cath and he should be first case. His team hasn’t gotten a full report from the Cardiac MRI, but they do know that the function of his heart is not what they thought it was. His right heart is showing decreased function. … Continue reading →

This guy…

This guy managed to lie still for three full hours. We originally thought he was going to do the MRI sedated, but he wanted to try it without sedation. So he spent an hour in the MRI machine this morning, then took a break and then spent another two hours in the MRI machine this … Continue reading →

Quick update from Houston

First of all, thank you to everyone who has called and texted checking on us. We truly appreciate it. And now for a quick Colman update. Colman was admitted to Texas Children’s Hospital yesterday. A week ago, he started coughing around 4 a.m. He couldn’t lie flat in bed without coughing, but once he stood … Continue reading →

The good, the bad, and the ugly

Let’s start with the good news first. I took Colman to Texas Children’s Hospital in Houston for his cardiology checkup on Friday, 12/20. In six months, he’d gained 11 pounds and grown two and a half inches. He’s now 4’10” and weighs 76 pounds. For everyone that’s kept up with us, you guys know the … Continue reading →

The Kimmel Effect

I woke up Tuesday morning to several texts and messages from friends that included the clip of Jimmy Kimmel’s dialogue about his son, Billy, born with the congenital heart disease, Tetrology of Fallot with Pulmonary Atresia. It’s an amazing story. It’s so much like my story and the stories of millions of people across the … Continue reading →

Halloween Hangover

I don’t remember being this exhausted the day after Halloween last year. If it was on a Sunday, then we would’ve had to get up and go to work on Monday, right? Unless… …Leap Year? And after checking my calendar, I realized we did have a Leap Year, which means that we had all day … Continue reading →

Short-term memory loss can be a good thing

I think the key to parenting boys is short-term memory loss. For example, last night Kevin and I had to do a divide and conquer with kids’ activities. So Kevin took Rowan to the batting cages, and I agreed to take Liam and Colman to their Boy Scout meeting. In the midst of helping everyone … Continue reading →